Access to clinical trials
As part of the Children’s Oncology Group (COG), members of the Yale New Haven Hospital Pediatric Hematology and Oncology Program work cooperatively with other academic health centers to conduct large-scale investigations. Our participation in clinical trials and research help to assure our patients have access to the newest and best treatments available.
Access to clinical trials for teens and young adults at CT Children's
The Reid R. Sacco Adolescent and Young Adult (AYA) Cancer Program at Connecticut Children’s provides comprehensive cancer care for adolescents and young adults. We offer state-of-the-art medical care and support for the unique emotional and social needs of patients in this age group. One objective is to increase AYA access to clinical trials.
End of life support
Connecticut Children's psychosocial team offers patient, sibling and family support services and includes psychologists, social workers, child life specialists and a resource specialist. Our cancer support services include resources and supportive counseling for palliative care and end of life needs.
Friends of Karen offers end of life and bereavement support for parents and siblings.
Yale New Haven Hospital offers support for children who are terminally ill.
Free workbook for caregivers of blood cancer patients
The information in the Caring for Kids And Adolescents with Blood Cancer workbook, from the Leukemia & Lymphoma Society, is written for the parent/guardian of a minor child (up to age 18), and includes information about caring for your child, treatment options, school, nutrition, financial and legal issues, and more. This Family Workbook includes a set of worksheets and activities and includes a tote, journal, pen and pill organizer.
Information about life after blood cancer
Navigating Life During and After a Blood Cancer Diagnosis - Use this Survivorship Workbook, from the Leukemia & Lymphoma Society, to collect all the important information you need throughout diagnosis, treatment, follow-up care and long-term management of a blood cancer.
Information and support after surviving cancer
The REACH for the STARS Survivorship Program at Connecticut Children’s encompasses research, education, advocacy, continued life and health (REACH) for survivors tackling all roadblocks successfully (STARS). The unique program provides guidance and ongoing support to pediatric, adolescent, young adult cancer survivors along with access to resources to help them improve and maintain their quality of life.
Information for child cancer survivors to be healthy physically and mentally (HEROS program)
Health, Education, Research and Outcomes for Survivors (HEROS) Clinic, at Yale New Haven Hospital, offers children, adolescents and adults a survivor clinic focused on wellness issues after treatment for childhood cancer. This unique clinic empowers patients to live their best life after cancer.
Medical information
Circle of Care's The Purple Pages is an up-to-date resource guide that provides families with trusted, current information from the day of diagnosis to life after cancer, and everything in between, from people who have been there before.
Connecticut Children's cancer support services include education and emotional support for medical procedures. In addition, the Reid R. Sacco Adolescent and Young Adult (AYA) Cancer Program at Connecticut Children’s provides comprehensive cancer care for adolescents and young adults, including medical information on many subjects.
The Leukemia & Lymphoma Society offers medical information about different types of blood cancers, through booklets, webcasts, and videos.
The Yale New Haven Hospital interdisciplinary team collaborates to provide adequate, illness-based education, training and information.
Nutritional education
The Nutrition Handbook, from the Leukemia & Lymphoma Society, provides tips and resources that you can use to help you prepare healthy meals for you and your family.
The Yale New Haven Hospital interdisciplinary team includes a Registered Dietician to provide nutrional support for the patient.
Palliative care
Yale New Haven Hospital offers pain and symptom management, decision-making, goals of care, supportive resources for life changes, spiritual resources, advanced directives, and more.
Roadmap of treatment and care
Speak one-on-one with an Information Specialist from the Leukemia & Lymphoma Society, who can assist you through cancer treatment, and financial and social challenges and give accurate, up-to-date disease, treatment and support information. Our Information Specialists are highly trained oncology social workers and nurses located in the U.S.
Yale New Haven Hospital's interdisciplinary team (doctors, nurses, child life, social work, dietician, physical therapy, etc) works with patient families to provide a roadmap regarding the patient's treatment and care.
Teach you how to use medical equipment at home
Yale New Haven Hospital's interdisciplinary team collaborates to provide adequate, illness-based education, training and information for use of medical equipment at home for patients. Referrals to agencies are utilized when in-home nursing or higher levels of care are indicated.
